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dadsdoll6
My daughter has been running a fever and severe headache for months now. had several test run to no avail.help
we have been to corpus christi to the childrens hospital three times and no one can find out what is going on. she has leg cramps, very tired, bad headaches, high fever (101-104), sore throat. she has been checked for mono 5 times now and it always comes back negative. please help us find out what is wrong with my child.
Additional Details
she is 12 years old. almost 13, in october. we have made several trips corpus christi, tx and had blood test after test, cat scans, everything you can imagine. her fever runs between 101-104. she has muscle aches, leg cramps, sore throat, fatigue. any help will be greatly appreciated!
                     




Liz Natan
In response to some of the suggestions:

-Mono: Anytime somebody under the age of 25 walks into a healthcare facility complaining of fatigue will warrant a nurse to stick that poor person in the arm for monospot test.

-Dehydration: Not likely because it doesn't explain the fever nor the fatigue. Persons suffering from dehydration experience fainting and dizziness. These are short term and are unrelated to fatigue. But, it doesn't hurt to make sure she is drinking enough water and replenishing her electrolytes.

-Hypokalemia: A routine blood test would have shown this. After multiple the visits to the hospital, a doctor should have noticed if this was anything other than normal.

-Hypoparathyroidism and Hypocalcemia: One causes the other. The only symptom that matches is the leg cramps.

-Meningitis: She is only experiencing two of the symptoms. The other most identifying symptoms are a rigid, painful neck and an altered mental status.

-Lyme disease: After the first bite, people normally experience and non-bothersome rash or red bite mark. Not long later, this same same rash can appear anywhere on the body in multiple places at once. Normally, Lyme disease can be caught before it gets into it's final extreme stage with symptoms similar to your daughter's. However, a person would experience a lot more symptoms than just the five you indicated. Lyme disease is only spread through the deer tick. I checked the range of the deer tick and it has Corpus Christi as a no to low risk level.

My leanings are towards an acute infection. If the symptoms have persisted longer than three months, take her in for genetic testing. This could be either a chronic condition or genetic.

If she ever experiences a fever greater than 104 again, take her to the ER asap. Mental and neurological deterioration begins at temperatures greater than 105. Simple proteins in the body also break down at this temperature, so prolonged exposure could possibly mean death.


baaabyboo
-Dehydration could be causing the headaches, fever and leg cramps. Be sure she is drinking plenty of water and clear liquids throughout the day. When she uses the bathroom first thing in the morning, look at it- if it is bright yellow or has an odor than this is likely the problem.

-Hypokalemia is low Potassium- this could also be the cause. Her Dr should order a test to check her Potassium if he/she hasn't already.

-Hypoparathyroidism is also possible. The normal TSH and Free T4 tests don't detect this, but her Doc should be able to test and make sure that this is not the problem. Does she have any problems with her weight, whether it be too high or too low? If so, this could be the problem. However, not all Patients with parathyroid problems have weight issues. If she has this, a surgery can remove it.

-Hypocalcemia-- is her Calcium low? I can imagine that her Doc has ran a full blood workup on her to check her vitamins and minerals, but if they haven't, they need to. Make sure she is fasting for these tests even if they don't ask her to. A good time frame is about 8 hours before her blood is drawn.


I can imagine that the pain for these symptoms is quite bothersome to her. Please use caution when using OTC's to help her cope with the pain because even if she uses something three times per week, it is a lot for her liver to process at such a young age.

I would reccomend getting her an appointment with a Neurologist. The migraines and leg cramps together (eliminating the fever, which could just be from her body coping with so much pain) could be a neuro-muscular disorder that needs to be detected asap.

Good luck, and don't give up... my Mom had a severe pain in her leg that she complained of for 5 years and finally gave up- then almost died because she had a tumor that the Doctors never checked for. Pain is there to tell you that something is wrong with your body. She is listening to it, and the medical professionals need to also. New illnesses, diseases and disorders are being discovered all the time. Don't let them push her aside.


Willson S
Rating
If the doctors run tests and still do not come up with a cause then have her make changes to her lifestyle.
Have her drink water and eat healthy food such as fruits or vegetables. Have her exercise as well, moving along with drinking plenty of water and eating healthy may help, and improve overall health quality.


nana4141
Rating
http://www.springerlink.com/content/j6641tw3463l6445/


Desdemona74
It may be some kind of allergy. some kids respond in different ways to products like dairy and meat. watch what she is eating, try changing her diet. one week no meat, if no change, next week no dairy, so forth, I have seen cases like this and they did what I suggested to you. it helped them. maybe it can help her too. (from one mother to another, I feel your pain and I hope you do find out soon.)


Iron
Rating
A simple test to have will be a sed rate.(ESR).
Re what she has can be a vasculitis (inflammation), or chronic fatigue.
if the docs are idiots, start Turmeric twice a day one teaspoon, omega-3 twice a day.

Chronic Lyme type meningitis can aslo give these symptoms so a spinal tap is needed.
cidpusa .org


Just Joyce
Rating
So sorry your daughter is sick . . .fever alone will cause fatigue . Push the liquids . . .muscle cramping can come from dehydration. . .I'm sure the hospital has told you this . . .The fact she has a fever shows she has a virus of some kind . . .maybe they can't tell you more until more symptoms show up . . .My heart goes out to you . . .i know i would rather be sick than one of my kids . . .just hang in there and do what the doctors say. I'll add both of you to my prayers. Good luck


Inlove
Rating
My first thought was she needs a spinal tap, or some people call Lp, lumbar puncture, r/o meningitis. I think you should make a trip to Houston, Texas Childrens Hospital. It sounds like you have been told theres nothing wrong, but it she has continued to for 2 months, Something is wrong. Or you could try UTMB in Galveston if insurance is a problem. Good Luck to you and your daughter.


LouieAP
Rating
Does anybody at her school have any of the same symptoms or had them anytime recently (within the past year)? Have you talked to the school nurse to see if there are any students that have similar symptoms? Knowing this can often shed a great deal of light on what might be causing her illness. It would also be helpful if you can describe her whereabouts all the way to 6 months prior to her symptom onset, especially to places that she may have been unfamiliar with at the time.

Because the cause seems to be so elusive, it might be something rare such as meningitis or lyme disease. Has she had a spinal tap done? This would show if she had an infection in her spinal fluid. It is a painful procedure that carries some risk, but with the fever and headache and fatigue it would be called for if nothing was found in a blood test.

one Source of information that might be helpful is at the website below. On the front page is the Multi Symptom Checker where, as you might expect, you can put in several different symptoms to see which diseases can produce all the symptoms. However, a word of warning: You will find some extremely exotic diseases that, unless she travelled to a very, very, very remote part of the world, she would almost certainly never contract (such as Ebola, Q Fever, etc.). Used properly, though, this information can be extremely helpful as well.

I hope you are able to find a diagnosis soon and that this post may help you.


MelThrills
I'm not possitve..

Allergies and Sinus issues can cause most of these symptomes... So, I'd check for that. I get sick like that sometimes, And It's my sinus infection that I get constantly that does It. The leg cramps could be due to growing- and perhaps cause the other symptomes..
I'm only going on fourteen in 23 days, so I'm deff. no doctor, but I hope my input helped out. Feel Better Soon!


Erica W
Rating
Please get her checked for mennigitis... My son had the same simptoms and had to get a spinal tap done to determine that he did in fact have it!! It is deadly if not detected. PLEASE get ur child checked!!!!!!!!!!!


Kitten J
Time to start over with some new physicians at a different hospital.
Corpus Christi is not helping you.
It's time to see new doctors, somewhere else. I'm not from your area-
Let them start from scratch with a fresh set of data and faces - this is your best option.


alliblue
I too am NOT a Dr. of any kind. Have you thought about MD Muscular Dystrophy, or PI Primary Immunodeficiency? The muscle involvement made me think of the MD, maybe consult a neurologist. Repeated infections can be a sign of PI, I am really unsure where to go for that. Here is a couple links for you to hopefully get somewhere.
http://kidshealth.org/parent/medical/bones/muscular_dystrophy.html
http://www.mayoclinic.com/health/primary-immunodeficiency/DS01006/DSECTION=symptoms


hankhelmer
Rating
I don't know about the cramps but I had lots of headaches and I had to get my sinuses checked out and we found that it was a bad sinus problem. I had to get a CT scan. maybe it's that


mrssmith
i totally had this exact problem once when i was about 7 so my mom let hot water run in the shower and closed the door of the bathroom to let the steam fill the whole bathroom then she sat with me after it was all steamy she had me put on my bathing suit and tie my hair up sit on the toilet for however long i could take and the steam is supposed to break the fever... then when i got dressed she had me sleep and made me wear freezing cold water drenched socks and while i slept she kept changing my socks making sure they stayed cold


Brian
Did she have strep throat, could be scarlet fever which occurs when strep goes untreated. If she had it she would also have a rash and swollen lymph nodes. If this goes untreated, it could progress to a variety of potentially life threatening illnesses like meningitus.


PuttPutt
Make sure she is drinking plenty of fluids - at least 8 cups of water a day. Dehydration can cause many of her symptoms. Has she been tested for Lyme Disease? How about other viruses and bacterial infections? If they are just checking for mono, they need to widen their search for possible culprits.


Leeandy Nova
Rating
If your daughter has been to several hospitals, I am sure they've already ran tests for things like hypokalemia (low Potassium) and Thyroid panels. I have to disagree with one of the earlier posters when they tell you that low Potassium levels would cause your daughter's symptoms. Low Potassium can cause a racing heartbeat (tachycardia) and muscle cramps that feel like those kind you get when you cramp your foot up.

What it all comes down to is the Hypothalamus, a part of your brain that controls your endocrine system. The Hypothalamus sends messages to the pituitary to control the body's autonomic functions such as heartbeat, digestion, etc.

The hypothalamus also controls hunger, thirst, menstrual cycles, cortisol, and many, many other things.

The symptoms you describe - sore throat, aches & pains, headache - can be a side effect of the fever itself. A fever that high can make somebody feel absolutely miserable. A perfectly healthy person who has a fever can feel like they have the flu.

Please have your child's hypothalamus checked. This can be done through a Neuroendocrinologist. They are VERY difficult to find, so perhaps an Endocrinologist, a Hematologist (blood doctor) and a Neurologist can work together. The hypothalamus is a foreign word for "homeostasis," which means stability, in essence. It is the proverbial "thermostat" for the body. Also, a CBC is useful in ruling out infections, and hormonal tests may be helpful as adjunctive diagnostic tool to see how the hypothalamus is functioning.

Finally, if your child has a foreign object such as a very deep splinter, her body may be attacking it and rejecting it much like when some people get an ear piercing and their body rejects it right out of their skin!

Hope this helps.

-Leeandy Nova


jovs
Rating
seek for a second doctors opinion... you can try out other hospital specializing in pediatric cases.... sorry for this sad news!!!


me
Rating
Have they tested for Lyme Disease


bkdaniels2006
Rating
Please, I assure you, that there is no need to be afraid. Contrary to popular belief, fever is an alert to the possiblity of disease and fighting, in a natural way, that illness or disease. In this case, I really see no need to desire to surpress the fever. However, because your child is experiencing additional symptoms, we will investigate futher.

Leg cramps are hardly ever, if ever an sign of a major illness. Leg cramps may plague teenage athletes at times of extreme exertion, but drinking plenty of liquids to replace the loss of body fluids and imbalance of salts that cause the discomfort can help. (Remember, water alone may not rehydrate or replaceing the lost salts from the body better than a rehydration drink, such as Power Aide).

Another idea for you to consider is an affected child with dehydration will become irritable, then lethargic
(extremely sleepy), and a fever may develop. In more servere case there may even be a decrease frequency in urination, skin dryness, and a weight loss.

It is rare that a headache signal any serious disease, as well in a young adult. A headache can, however, present along with muscle aching in an early feature of influenza or other viral infection. In this event, there are no antibiotics available. Symptomatic treatment is the rule.

Sore throat can be a problem during a minor viral infection such as the common cold with nasal congestion, and they usually last a day or two if the child is given plenty of fluids. You should also be aware that there is a possibility of a streptococci, or strep, infection (strep throat). The only way to tell if there is a strep infection is if a doctor swab the back of the throat. If the strep germ is found, the child will be given antibiotics for a period determied by her doctor.

Even if we can not put a label on the childs head and name a specfic disease entity to explain her symptom, I think it would be a good idea to treat each symptom indivisually, except the fever, and I would even treat that if given the say so by a Physician. Treat each symptom, e.g. dehydration, but be sure to return the child as soon as possible the the hospital for a throat culture since untreated, strep throat can lead to rheumatic fever.

Hope this answers your question!


max
Rating
have they checked her white cell count? Dehydration is possible although i doubt it would last this long. Take her to the doctor and let them know that she isn't getting any better and there is no reason for them not to do further tests to figure out why she is so sick.


Dr. Patrick V. Suglia
Rating
My first impression would be meningitis. Have they checked her for that? I would not immediately suspect mono. Having a white blood cell differential count, and perhaps even a spinal tap, would tell a lot more about what is going on. If they can't find anything, I would be happy to perform a second opinion, although I am located in the upper midwest.


Mary N
Rating
See if you can get her records sent to Texas Children's Hospital in Houston. They can help just about anyone there.


Diana H
Rating
This is just a hunch but she may have valley fever. It comes from dirt, or soil. Take a look and read about here at the Mayo Clinic.

http://www.mayoclinic.com/health/valley-fever/DS00695/DSECTION=symptoms

I wish you the best..... God Bless!


[email protected]
Rating
I know exactly where you're at.. my hometown is down there... maybe it's some sort of bacteria.


Mayzie
-Dehydration could be causing the headaches, fever and leg cramps. Be sure she is drinking plenty of water and clear liquids throughout the day. When she uses the bathroom first thing in the morning, look at it- if it is bright yellow or has an odor than this is likely the problem.

-Hypokalemia is low Potassium- this could also be the cause. Her Dr should order a test to check her Potassium if he/she hasn't already.

-Hypoparathyroidism is also possible. The normal TSH and Free T4 tests don't detect this, but her Doc should be able to test and make sure that this is not the problem. Does she have any problems with her weight, whether it be too high or too low? If so, this could be the problem. However, not all Patients with parathyroid problems have weight issues. If she has this, a surgery can remove it.

-Hypocalcemia-- is her Calcium low? I can imagine that her Doc has ran a full blood workup on her to check her vitamins and minerals, but if they haven't, they need to. Make sure she is fasting for these tests even if they don't ask her to. A good time frame is about 8 hours before her blood is drawn.


I can imagine that the pain for these symptoms is quite bothersome to her. Please use caution when using OTC's to help her cope with the pain because even if she uses something three times per week, it is a lot for her liver to process at such a young age.

I would reccomend getting her an appointment with a Neurologist. The migraines and leg cramps together (eliminating the fever, which could just be from her body coping with so much pain) could be a neuro-muscular disorder that needs to be detected asap.

Good luck, and don't give up... my Mom had a severe pain in her leg that she complained of for 5 years and finally gave up- then almost died because she had a tumor that the Doctors never checked for. Pain is there to tell you that something is wrong with your body. She is listening to it, and the medical professionals need to also. New illnesses, diseases and disorders are being discovered all the time. Don't let them push her aside.

Good luck!



--I don't understand why you guys are leaving me thumbs down! These are real medical facts!! :)


Cat
Rating
Lyme disease?

I watched a TV program today (not sure the name, might have been Medical Mysteries) where they said it is difficult to diagnose, and some tests for it can come back negative even though that's what the person has.


onlymatch4u
There are many things it could be. Many times, parasites will cause the symptoms you are describing. Most of the time, these will not show up on blood tests. Another possibility is that she is not getting hydrated well. This requires the proper water intake, but also the right electrolytes. If she drinks lots of sodas, tea, coffee, energy drinks, commercially prepared fruit drinks, etc., these will dehydrate her. If she is eating lots of low density carbs, like white flour and white sugar, this will cause her body to be stressed.

In regard to the water, take her total body weight and divide by 2. That number is the number of ounces she will need to consume each and every day. If she drinks sodas and the other diuretic drinks listed above, this will dehydrate her. She will have to add 1.5 x the number of ounces of those drinks in water to compensate for what they take out of the body. Also, to assure that she is getting the amount of electrolytes along with the water, she needs to eat 1/4 teaspoon of "air dried sea salt" per 32 ounces of water she drinks.

You can have her tested for parasites by using QRA testing. If you are close to Dallas, Texas, there is a place in Round Rock, south of their about 45 minutes that can do this testing and you should call them at: (800) 370 - 3447. They can also figure out the problem better than any other method you have tried in your posting. If it is parasites, it's not difficult to fix.

good luck


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